helpful links:

www.midwestheartconnection.com This group was started in hopes of connecting parents in the Midwest.  Connecting with parents is what helped us most.

Children's Hospital Omaha The best surgeons & doctors anyone could hope for!  We are extremely fortunate to have this group here in Omaha.

Rainbow House  Many families stay at the Rainbow House while their child is at Children's Hospital.  They don't have their own website, (that I know of yet), but there is quite a bit of information about it within the Children's Hospital site. 

CarePages  Another way to connect with parents, as well as keep in touch with families.